I met a couple of great people while at training in Chicago who have started an organization to help individuals with autism! They
provide training for programs all across the world!! This is an e-mail I received regarding their upcoming events.
Thanks for your interest in AACTION & Infiniteach! Each quarter, we'll be sending out updates on our programs, trainings, volunteer events, and fundraisers. If you ever
want to get more involved, feel free to email us directly and we'll connect with you within a few days.
A few upcoming events that we want to share in this email:
•Infiniteach BRAINSTORMING Session - We're looking for feedback on our app ideas! It'll be a fun, interactive session where we want your insight into what you are
looking for in an educational app. The brainstorming sessions will be held in Logan Park: for teachers on Thursday, August 1 from 6-8pm, and the session for parents
on Saturday, August 3 from 10am-noon. Food will be provided at both sessions, and space is limited, so email me asap if you are interested in attending either session!
(Feel free to share this opportunity with others, as well!)
•AACTION Fundraiser with the White Sox! - On Saturday, August 10, AACTION friends will be watching the White Sox take on the Minnesota Twins. Tickets for the 3:
05pm game are $26, and $10 of that goes directly to AACTION! We will also be having a small tailgate before the game, where you can meet other AACTION
supporters, purchase pre-game food, and relax. I think we have a limited number of tickets available, so get your friends together and email me asap!
Finally, don't forget to LIKE AACTION on facebook!
Katie & Christopher
The Autism Program of Illinois (TAP) Marks Autism Awareness Month
By Announcing a New Collaboration to Protect Illinois Families
EMBARGOED UNTIL 10:30 A.M.
APRIL 9, 2013
TAPTOWN, IL – The Autism Program of Illinois (TAP) today marked Autism Awareness Month and its tenth anniversary by announcing a new collaboration to help make
Illinois’ highways safer for those with autism spectrum disorders and other cognitive and physical differences. TAP officials announced a partnership with the Illinois
Department of Transportation (IDOT) to make materials for that agency’s Yellow Dot program available at TAP centers across Illinois, including the center in TAPTOWN
operated by PARTNER ORGANIZATION.
Launched in 2011 by IDOT in cooperation with the Illinois Department of Public Health and the Illinois Department on Aging, the Yellow Dot program helps first
responders (police, fire and ambulance personnel) identify vehicle occupants who might require extra assistance in the event of a roadside emergency. A yellow dot
placed on the rear window of a vehicle alerts first responders to the presence of a medical data card stored in the vehicle’s glove compartment. The data card can
contain personal information, emergency contact information, important medical data, a photo or other instructions to help emergency personnel respond appropriately
in the event of an emergency.
“Access to accurate information can mean the difference between life and death in an emergency,” said NAME, TITLE. “For years, TAP network partners have stressed
that first responders must have the necessary information to allow them to deal effectively with persons with an autism spectrum disorder. Yet, until the Yellow Dot
program, there was no way for emergency personnel to know whether special care was necessary when treating those involved in a roadside emergency. Participating
in this program provides our center with another tool to help preserve the safety and dignity of those with an autism spectrum disorder.” For more information about the
Yellow Dot program, go to www.yellowdotillinois.com.
The TAP announcement came during Autism Awareness Month and just weeks after new data from the CDC revealed that current autism prevalence rates may be
understated. Official CDC figures state that one in every 88 school age children has some form of autism. Yet, according to NAME, more recent data from the CDC’s
National Survey of Child Health indicate that the number could be as high as one in 50. “While these numbers don’t replace the official CDC prevalence rate, they are
indicative of the trends that we and our partners have seen across Illinois. If those numbers are borne out, it will mean that more than 52,000 school age children have
autism, rather than the 30,000 we would expect based on the one in 88 figure.”
2013 marks the tenth anniversary of the TAP service network, a partnership of universities and nonprofit organizations with 18 centers across Illinois. TAP partners
have trained more than 61,000 families, caregivers, educators, health care professionals and first responders in the past ten years. Thousands of families have
received direct services from the network. “Each TAP partner is committed to doing its best to meet the need for services despite the state’s fiscal crisis,” NAME said.
Funded through a grant from the Illinois Department of Human Services, TAP has experienced budget cuts in each of the last four fiscal years.
Today’s announcement was one of many observations of Autism Awareness Month planned by TAP partners across Illinois. The Foundation for Autism Services Today
and Tomorrow (FASTT) is a day program servicing adults with autism. FASTT is located in Maryville, IL and has a variety of activities planned this month for Autism
Awareness. FASTT clients celebrated World Autism Awareness Day on April 2nd with a balloon launch. They are also pledging to walk a mile for Autism each Friday.
Donations can be made to the FASTT walk for Autism by sending a tax deductible payment to FASTT at PO Box 285 500 East Division Street Maryville, IL 62062. In
addition, April 12 there will be the Mock Rock Concert at Family Arena in St. Charles, MO. A portion of the proceeds will go to FASTT to help with providing a quality
adult day program for clients. For more information about FASTT, please contact Dawn Whalen-Bregenzer by calling 618-741-6409 or through e-mail at program.
firstname.lastname@example.org A complete list of Autism Awareness Month events throughout Illinois can be found at http://www.theautismprogram.org/2013/03/autism-
awareness-month-a-look-at-tap-events-around-illinois/. For more information on The Autism Program of Illinois, visit www.theautismprogram.org.
Newest Autism Data from the CDC Reflect Experience of
TAP Network Partners in Illinois
FOR IMMEDIATE RELEASE
March 21, 2013
SPRINGFIELD, IL – A new report from the Centers for Disease Control and Prevention (CDC) may indicate that Autism prevalence rates – currently at 1 in every 88
school age children – may be understated. The report, released yesterday by the CDC’s National Centers for Health Statistics, indicates that the prevalence rate may be
as high as 1 in every 50 school age children.
While more research is needed, the new results do reflect the experience of The Autism Program of Illinois (TAP) network partners, according to the program’s director,
Tara Glavin-Javaid. “We have long suspected that the CDC’s prevalence rate of 1 in 88 is understated based on evidence we are seeing in the field,” she said.
“Demand for autism services is increasing, and a number of our 16 TAP centers across Illinois have established waiting lists for those services in highest demand. At our
Springfield Center, the number of children enrolled in social skills groups has doubled, and there is a waiting list for diagnostic services.”
“While this evidence is preliminary, and it is too early to discard the 1 in 88 figure, the new data certainly add to the field of knowledge and tend to confirm our
observations at the clinical level,” Ms. Glavin-Javaid concluded.
Internationally known researcher, Dr. Bennett Leventhal, one of the founders of TAP when it began ten years ago said: “These are interesting findings that are
consistent with a previous study of Autism in Korea by Dr. Young-Shin Kim of the Yale Child Study Center and her collaborators. However, there are major differences
between the two studies. First of all, this CDC report is a prevalence of 2% whereas the Korean study reported 2.6%. But, the major difference is that this study is a
survey of parents and not a multi-informant, total population study. A more extensive total population study would count others and would likely increase the prevalence
“It is important to note that this is a ‘prevalence’ study which means a count of the number of people with ASD at a particular point in time,” Dr. Leventhal continued.
“This is not an "incidence" study. Incidence is a measure of the number of new cases. In other words, this study does not tell us if the number of ASD cases is really
increasing or if we are just counting more.”
Karen G. Foley, President and CEO of The Hope Institute for Children and Families noted that the data also confirmed the importance of early detection and
intervention. “Data confirmed that much of the increased prevalence occurred as a result of new diagnoses, which are happening at earlier ages. Not surprisingly, those
children receiving early diagnosis and treatment are experiencing better outcomes. The message for policymakers is clear: despite our state’s fiscal crisis, this is NOT
the time to cut vitally-needed funding for autism services. Rather, this is the time for public and private funders to come together in support of best practices and
systems of care – like the TAP network model – that can be replicated across our nation.”
Funded by a grant from the Illinois Department of Human Services, The Autism Program of Illinois (TAP) is the largest statewide Autism service and resource network in
the nation. The efficacy of the TAP model has been confirmed by researchers from Baylor University.